Abby Milburn is the mother of Lottie, a little girl living with both Sanfilippo syndrome and Down syndrome. She lost her cousin Samantha to Sanfilippo syndrome nearly twenty years ago. She advocates for rare disease families through her platform, Let's Save Lottie. Follow her at instagram.com/letssavelottie and read her open letter to President Trump and Congress at realclearhealth.com.
